Showing posts with label pain. Show all posts
Showing posts with label pain. Show all posts

Monday, 10 October 2011

Still here

Boring Health Crap:
1) the Mystery Illness seems to be abating, on its own. I'd still rather know what it was, but at least I'm getting better.
2) I hurt my back a couple of weeks ago. I'll be fine, but it's painful and affecting mobility and my ability to work.
3) My Gee Pee wants me to see the Trick Cyclist about medication I've been on for years (and which is working just fine for me, thank you very much). This worries me. The tablets help, you see, to the point that I feel uncomfortable when faced with the fact that medical professionals who have no idea what it is like to be inside my head might take them away. But last time I had to do this (two years ago) the Trick Cyclist in question was very sensible and so there is probably nothing to worry about. So I keep telling myself.

However, this stuff takes a back seat to something else:

I'm being confirmed on Sunday.

Assuming I don't get cold feet between now and then, that is.



Saturday, 20 February 2010

Mundane medical stuff

My body has been more achey than usual recently; this week I hauled myself off to first-line tech support (my local GP) to see if anything could be done about a couple of joint-related things.

I have a new diagnosis concerning one of my hands. It isn't really unexpected; people with another of my conditions are quite prone to it. There's nothing they can really do about it at this stage of things: all the treatments would involve serious loss of functionality, and I'm already doing all the preventive stuff I reasonably can. This isn't hugely painful yet, more a mild niggle that I thought I'd better mention, and at the moment I do have full functioning...the worst bit is not really knowing whether or when it will deteriorate, knowing that I'm really not in control of whether I will be able to play.

I also have some stronger tablets to try for a couple of weeks in hopes that the recent flare-up of ongoing stuff will calm down. We shall see.

I am trying to look on the bright side of this, to accept that it could all disappear anyway, I could be hit by a bus or whatever and poof! all gone! All of life is provisional, a gift, and it's absurd to expect mine to be free of pain or disability. I'm not sure if I'm succeeding, taking this in stride as just one more thing that sets me apart from those who are considered healthy and normal in this society, or if I'm simply ignoring the news.

Thanks be to God for the NHS, though -- without it I wouldn't be able to afford treatment.

Make me hear of joy and gladness,
that the bones you have broken may rejoice.
--Psalm 51, v9

Tuesday, 19 May 2009

On Fear

FranIAm made a post on fear in which she asked us to discuss our own fears.

My comment was long. I don't know whether I like it or hate it, but it seems significant enough to post here.


Fran, thank you for this post, and for being so open about your own fears.

Money fears get to me, too, more than I'd like. At the moment I mostly deal with them by being very avoidant about money; I'm a bit of a spendthrift, I have debt that has piled up while I've been a student (though not as much as some, because I've been able to continue working), I tell myself that my studies are more important and I'll deal with the money stuff afterward. Afterward is starting to get awfully close and I suspect it is not going to be pretty! In the long run I know I have to grow up about this a bit.

The money issues, for me, are about scarcity of resources; having enough to survive. Another area where these fears are apparent is in my relationship with food: again, I'm worried about not having enough. I mostly manage not to overeat too badly, but one only has to glance at my cupboards to realise that I'm a champion hoarder. I probably have enough non-perishable food to get through a month, and that's not through any systematic effort. Empty shelves make me physically uncomfortable.

I can look back to childhood experiences for those manifestations of scarcity thinking. It's fairly obvious where and how I picked up the habits. But these worries about the scarcity of external resources are really only scratching the surface of my fears. Underneath there is a deeper concern: the fear that, somehow, I am Not Good Enough. Not Good Enough that people who claim to care for me would look after my physical needs if I were unable to do so for myself; Not Good Enough to be helped back up if I fall, comforted if I am in pain, held if I'm lonely, loved. It's not that I fear not being loved, so much as being, ultimately, unlovable.

Thankfully I have plenty of evidence that this is not the case, but it still frightens me. And it's still a strong enough possibility in my mind that I sometimes get spooked and think that those who have power over my life might take a dislike to me and actively try to hurt me. Male authority figures who are taller than me are the most terrifying; after five years I still feel incredibly anxious every time I have to meet with a certain person at Academic Institution, even though he has shown himself to be of good will. And one of the reasons I feel so comfortable at Leafy Suburb Church is definitely that the priest and deacon are both female. Working with conductors is also difficult, and though I manage this relatively well I feel far more stress with a man up there waving the stick around than I do with a woman. Again, this is traceable to specific childhood experiences.

The result of all this is a grasping after control. It's ultimately futile, but my full cupboards are a vain attempt at having control over my food supply; so is much of my interest in gardening and foraging, though those have also brought me great joy. I fear my physical disabilities not so much because it is likely I will end up with much more severe chronic pain than I have now, but because I am terrified that I will lose the ability to do enough work to look after myself. I have in the past been extremely clingy and co-dependent in relationships, bending over backward to please a partner and expecting that they do the same for me and then being devastated when they won't or simply can't. I have been extremely intolerant of other people's failings when they have let me down, and even more intolerant of my own failure to keep everyone happy--which is pretty much impossible, as any fule kno.

I do better now, I think. I'm certainly much happier, and certainly less ruled by fear. There are a number of reasons for this. One is just that three years of therapy taught me a lot about re-framing, and I don't interpret so much of the world from the assumption that people hurt me on purpose. I've learned that what people want to do and what they would like to do are often separate, that nobody has enough information to do the right thing all the time, and that most people have no more ill will toward me than I have toward them. There was a period of time when I knew this on an intellectual level but could not grasp it on an emotional one, and that was a very difficult stretch, but being as objective as possible did help me to become less afraid. It's really not all about me and my fear, despite the increasing length of this comment on said subject.

Another reason I am less afraid is because I do actually have more control over my life now than I did. I've had diagnosis of two long-term conditions, both of which were affecting me hugely in ways which were not taken seriously by others. Neither of these are likely to ever be cured, but both of them have options for management which reduce my difficulties, and as I learn more about how these conditions affect me and what works for me and what does not, I gain even more control. It's been a hard shift, going from having a goal of running the London Marathon to having a goal of staying off prescription painkillers until I'm 40, but that's a world and a half better than being in pain all the time and not having any clue what was going on and being told it was all in my head. Now I'm in pain about half the time and can make good decisions about whether to medicate or rest. (The physiology of pain is an interesting side-note here, too; chronic pain can really, REALLY mess with brain chemistry. It certainly has an effect on my mood, though my pain tolerance is relatively high in terms of ability to function physically despite pain.) And I'm getting more skilled at managing the other perils and dangers of this earthly life, and more confident that if everything goes wrong I will still be able to feed myself.

Another reason I am not as fearful as I once was is because, for whatever reason, some people saw fit to help me. And they kept trying, and kept trying, and kept trying even when I was really rather horrible to them, and somehow eventually I was able to see it, and believe that maybe, just maybe, if these rather wonderful people cared enough to love me, I might be lovable after all, or at least not abhorrent. There is one person in particular in the last few years who was a huge support to me; I've not worked out whether her effect on my life is because she happened to be there at the right time and I was ready for those changes or if her particular capacity to love was different enough from my previous experience to get through to me. It may be some combination of both, I'll probably never be able to figure it out. But now that I have that hope to cling to I look back and see that actually, many others have helped me, cared for me, loved me even when it has been hard for them. They far outweigh and outnumber those who have hurt me, either through incompetence or through lashing out in fear and pain themselves. They even outweigh those who might have been truly sadistic (though the more I think about it the more I think those were just very, very fearful people, acting the only way they knew how). And realising that and allowing myself to feel loved and risk loving has opened the floodgates, and suddenly I love more than I fear. The flailings and thrashings of people who are frightened do make me sad but they don't hurt me as much as they did, because I know they are hurting so very much more and I just want to show them that they are loved, intrinsically lovable children of God. I want to sow harmony where there is discord, I want to sow hope where there is despair, I want to sow joy where there is sadness, healing where there is injury, all that other stuff from the prayer of St Francis of Assisi. There doesn't seem to be any other sensible response to the depth of love that I have felt, even if sometimes it seems like a distant glimmer, even if sometimes I feel alone and frightened.

I have limited energy and limited time and have to pick my battles to an extent, but I think maybe that's what discernment is about. Not about what to do--what to do is to spread love and hope in the world--but about how to go about doing so.

The word verification is "twament". I'll probably have to re-post because I spent so long writing this, though. (Yeah, I did. Second word verification is "insts", which isn't nearly as good.)

That's where the comment ends, but I should add a few things:

Those of you who know me well will be able to read between the lines on some of that. Please respect my desire for anonymity in this forum.

Some of this makes it sound as if I'm never afraid, never act badly out of fear, am always able to somehow get above scarcity thinking. That is not the case at all! But I've gone from my fears being so overwhelming it was hard for me to get dressed in the morning to being able to participate in life to a much fuller extent, to being able to engage with my fears on a more meaningful level than just hiding under the duvet. I may only just pass as 'normal' but it's a huge change for me. And for me, whether I'm able to function seems to have a lot to do with how I relate to fear, and how I relate to fear seems to be directly affected by whether I feel loved and lovable. Your mileage, of course, may vary.

There may be another post on fear, language and scripture at some point. Or there may not. I'm meant to be doing a degree...

Saturday, 16 May 2009

Celebrations and Concerns

What a week it has been!

In some ways a bit of a rough week: it's just That Time of Degree, I'm afraid, there is a silly amount of paperwork to be done and I've been put into a performance project which is eating serious amounts of time in rehearsals that are, quite frankly, rather tedious at best. I've had a bit of a cold which always saps my energy and makes my chronic health problems more symptomatic; there's not a lot I can do about that but rest more, but see above re: scheduling. It's all rather overwhelming and discouraging if I think about more than one bit of it at once. And Sweetie is away this weekend, so I am at home by myself facing a very messy bedroom and wondering whether to use my 'rest' day to try to make it a little more livable.

It has been a very hard week for various friends of mine for reasons I'll not discuss here. They have been very much on my mind and in my prayers. At times this week I've also felt quite overwhelmed by the sheer amount of pain and hardship in the world. There's so much I can do so little about, and so much I should do something about but fail to do, and I don't quite know where to start. It's the typical save-the-world-before-breakfast problem.

The good, though, far outweighs the bad.

Monday's post basically wrote itself and I don't really feel like I can take much credit for it. But the positive response to it has been cheering me all week, partly because it's flattering to my ego to be told I've done something good but partly because I so desperately hope that the vision of the world I put forward in that post is actually true... having so many of you affirm the truth of what I wrote feeds that hope.

On Tuesday night I was gripped by a different sort of creative inspiration (or maybe it was the fever I had?) and got some composing done; I shouldn't really be working on non-degree stuff right now but this would not let me go to sleep until I wrote it down. It isn't finished, and won't be for a while, but I've been agonising over another composition project (for which I still have not found an appropriate text) and the reminder that yes, I can write music, was very welcome.

Wednesday night (after coming home early from my studies to drink soup and feel sorry for myself) I had a meeting with Sweetie and Future Housemate. Dreams and vague hopes are becoming plans: we have a budget, and a timeline, and a plan to find somewhere to live. This is very, very exciting for me: I've never lived in any house longer than three years, I've spent the last few years in various fairly transient housing, and putting down roots somewhere is looking very attractive. I will have a home, not just a place where I sleep and store my things. I've hoped this many, many times before, but I think this time it might work, because Future Housemate is looking for so many of the same things I am.

Sweetie has been unemployed for some months; last week he was offered a job but the contract did not turn up right away. Thursday he got the contract! Much relief all 'round: this lifts a load of worry from him and makes our future plans much easier. It means I will be able to take a long-term view of building up my paid employment to levels that will support me (and eventually others) well financially, instead of having to grab something short-term that actually hinders my ability to work on long-term plans. It means we can afford for me to take some rest after my degree, which will be much-needed and may lead to significant improvements in my physical health. It's just wonderful news.

Also on Thursday night was a rehearsal with Petite Violinist just for fun--no pressure, no deadlines to work toward, just reading through Handel and having a good time of it. What sheer joy! Of course by the end of the rehearsal we had a performance shoehorned into another concert, so the deadlines are back but they're manageable deadlines for both of us and it is always rewarding to play with Petite Violinist.

By Friday I was pretty wiped out by all of this and spent far too much time struggling with feeling rather miserable, but my last lesson of the day was just plain inspiring. And I realised that I do seem to be making some new friends, online and in person, and this was a great comfort despite feeling rather rotten for most of the day. And really--what day that includes Bach, Brahms and Tallis can be all that bad? Not to mention a bit of Ella Fitzgerald.

Today I am free to rest and that is what I will try to do. Tomorrow I get to teach, and weary as I am the thought still makes me smile. And I've managed to juggle my schedule so that I'll be able to get to Leafy Suburb Church for Evensong; it will be great to catch up with Deacon Friend and if the transport is good I might even sing in the choir again.

Monday, 13 April 2009

Hallelujah

Oh, what a few days.

Thursday, got to Dorset, walked around a lot. Went to Evening Prayer at Christchurch Priory, because it was there and I could. More said psalmody! But I was made quite welcome. Chickened out of going to Maundy Thursday services, partly because of my hosts' schedule and partly because I'm a big chicken.

Good Friday, walked some more. Spent a lot of time reading, thinking, reflecting; tried not to hide from my hosts too much. And of course, the performance in the evening.

Saturday, Holy Saturday I guess. Went for another walk. I walk a lot if I have the time and energy. I might have walked too far this time, my injured hip isn't very happy with me, but it was a good walk. I walked to Mudeford and along the beach there until I came to some cliffs. I sat and watched the tide coming in for a while. I took off my shoes and socks and let the cold eternal ocean wash my feet and couldn't help think of Maundy Thursday. Then I spent far too long on a train back to London, where I found we were out of certain essential items and so I went out for those and didn't get to any Saturday night vigil services. I was sorry not to.

Yesterday I spent in Leafy Suburb. I went to the 9.30am service at Leafy Suburb Church, and was delighted. The renewal of baptismal vows bit was difficult for me, in that I don't know which of these vows which were made for me when I was a baby are ones I feel I can make for myself. I have no real problems with the Father, the Creator, no problems with the Holy Spirit. But I do balk, I do clam up somehow, when we start talking about the Son. I have no problems singing about it. I have no problems talking about it in an abstract sense, in a sort of model-for-thinking-about-God way. But as much as I want to there are things I don't believe in the way I think the creeds mean them, not when they're the spoken word or the word on the page, and I can't say "I believe this" when I don't. Why am I so afraid to believe this?

Only singing works. I wish I knew why! I wish I knew whether what I believe when I sing is what I actually believe and my intellect is just getting in the way the rest of the time, or whether what I believe when I sing is some sort of ridiculous fantasy and my intellect is right to stop me believing it at other times. I wish I knew. I don't think I will be rid of this problem, this uncertainty, any time soon.

Nevertheless, I was grateful that the vicar was so thorough in her sprinkling of the congregation. There's so much water imagery in this desert faith... the Flood, the Red Sea, baptism. Ritual washing of hands, feet, souls. For a moment all of that was in the drop of water that landed on my cheek.

I'm still itchy about the Eucharist, still not sure whether I'd be welcome (formally or informally), but again, going up for a blessing seemed to be right, yesterday. The text leading up to it was different than on Tuesday. I was sorry not to have the Summary of Law. I missed the very Jewish blessings over the bread and wine. I don't really understand some of the differences, and I find myself wanting to. Is there a guide to C of E liturgy somewhere that's aimed at foreign heretics? I feel like I must be making context errors but I don't know what they are. I want to understand this.

Singing is meaningful to me and singing is, eventually, what I got: I had intended to stick around for Evensong anyway. I asked one of the choir members whether I might sing alto, if I came to the rehearsal in the afternoon... they've all heard me singing in the hymns at Evensong a few times now. I was welcomed with open arms by choir, musical director and clergy. So I sang my little heart out, in the rehearsal and in the service, and I'd do it all again today if I could. I won't say the performance was of a very high musical standard; the choir does very well for the amount of rehearsal and the spread of skills they have, but it's not what I'm used to at Academic Institution. But it meant something, and I believed every word I sang with every particle of my being. I managed to avoid tears but my eyes were quite ready to add their own water to my cheeks.

I think sung creeds and sung Eucharist might change my understanding and experience of Christianity in profound ways, with enough repetition and in an environment of loving kindness.

At the other church I at which I attend Evensong I don't think I would have the courage to ask to sing in the choir. I've been to about as many services by now, and people are welcoming enough, but there isn't the warmth of spirit. I think that when I am looking for a church to attend in the area of London I'm moving to, I need to look for somewhere that has the warmth of spirit that I can feel at Leafy Suburb Church. It may be a while before I can spare my Sunday mornings for singing in a choir but I hope to be able to do so at some point: it seems to be where I belong in church. There is a part of me that considers moving to Leafy Suburb, but it would make my commute to my existing teaching work, my existing social network, and Sweetie rather horrible, and wonderful as the people of Leafy Suburb Church are, I don't think I want to start over yet again. Leafy Suburb Church can't be the only one with that sort of community. That love must exist elsewhere. I hope I can find it, and add to it.

During the afternoon I had lunch with some choir members and then went for a walk. It was more of a sit than a walk really, I found a comfortable park bench and sat on it to read for a while, and then I walked a bit and found a comfortable tree to sit under and sat there reading for a while. My hip was hurting too much to do any serious walking. It's better today.

There has not been much time in all of this for reading teh internets. I may or may not catch up today in amongst various chores. Tomorrow it is nose back to the grindstone: I need to get the write-up for Big Project out of the way, as well as getting a good start on various other projects.

Monday, 6 April 2009

Otherwise

I'm still quite a bit more tired than I thought. And today is not a great day pain-wise. I don't seem to be dealing with either of these very well.

Today I appear to have:

-done one load of laundry, which I am having to do again because the washer did not work right and the soap did not go in.
-written a self-indulgent blog post that is too long for anyone to want to read
-failed to do any academic work at all
-failed to do any tidying, which I was meant to be doing this morning, other than the laundry
-been a wittering, mind-wandery, silly fool in comments on other people's blogs

Bah. I don't like how this post is going.

Good things I have done today:
-thought about my Sekr1t Pr0ject (shhh!) and realised some of what I was trying to do is just prevarication and I need to go ahead and make a decision already
-prayer
-got dressed
-ate food

And I will keep making it better:
-will shortly go for a walk in the glorious sunshine; it is a nice day for prayer in the park, I think
-will teach later, which I'm looking forward to.

So there.